Saturday, October 8, 2011

As long as I'm up

I'm having an EEG today because they want to make sure that I'm not having seizures in addition to strokes.  Suuuuuuuuuuuuure.   Why not.  So I'm up before the sun because there are some rules you have to follow before you have an EEG.

One is no caffeine.  *whimpering quietly*  I've weaned myself down to just one Mt Dew a day but I still get nasty-wicked headaches if I don't get my caffeine.  *checking the clock*  And it's going to be another 6 hours before I can have one.  That's a very long time to have one of these headaches.

The second is that for some reason they need you to be sleep deprived for the test.  That one mystifies me just a little bit but it's their party so I'll play along.   They said to go to bed two hours earlier than usual and get up two hours earlier than usual.  I did the math and that means that I only get 20 minutes of sleep, and that's only if it's a good night.  And to top it all off, I can't take pain meds because it could screw up the results.

This test was originally scheduled for last week but someone forgot to tell the tech so I went thru all this, got there and waited for an hour, and the tech never showed up.   Needless to say I wasn't a happy camper about it.  People who don't have insomnia have no clue what it means to ask an insomniac to give up sleep.   When you have insomnia, sleep is the most important thing in the world.  Hell, I don't even mind getting 60 shots in my back all at the same time because they knock me out for it and I get a good one hour nap!  Yes, I completely understand why Michael Jackson used anesthesia as a sleep aid.   To paraphrase a portion Stephen King's book "Insomnia", "Thousands of people die of insomnia every year  they just put "heart attack" or "suicide" on the death certificate."

If you've never had *chronic* insomnia you know exactly what I'm talking about.  Every precious second of sleep you can get is golden and every additional second that you lose is agony.  I'm not exaggerating about that either.  Insomnia is painful, especially if you have other issues too.  For me, sleep is the only way my body  can escape from pain and, more importantly, it's the only way my body can have any time to relax and heal at all.  It takes days, if not weeks, for me to completely recover from the effects of a night without sleep or even reduced sleep.  Since this is the second time in two weeks, it's twice as hard as it was last week.

There is the additional factor that the first major cold front of the year pushed thru this morning and there's freezing rain pelting the windows.  Neither Arthritis or Fibromyalgia are impressed with dramatic weather changes so my joints and my muscles all feel like we've gone ten rounds with Mike Tyson.

With any luck they'll get some useful information with this test.  I don't think I'm having seizures but who knows.  Even if they can capture some info about which parts of my brain aren't working correctly it would be helpful.  I just want to know that going thru this twice and paying a giant co-pay is worth it.  At this particular moment in time, I'm having some serious doubts but then again, I'd do just about anything for a Mt Dew and a two hour nap.

The longer I type, the sleepier I get so it's time to attempt moving around before the narcolepsy hits and I pitch face down onto the keyboard.  Perhaps I'll get in an hour or two of playing Neverwinter Nights before it's time to go.


  1. You know I love you and I am scared. I wish I could be with you in person.

  2. Another test down... You know I am always with your heart and mind. I love you sweetie, I always will. Samantha sends her love.