That is SO not what he told us in the office! I have no idea what made him change his mind. Why would he schedule the surgery if he doesn't think that I need it? And why is he completely overlooking that I have at least 8 nodules that are around 3cm and somewhere around *12* that are under 2cm. How much room does he think there is in there anyway and why the hell else does he think it's difficult for me to breathe? I really think that the simple test of "When I look down at my feet I can't breathe anymore" is fairly conclusive. There is also the fact that there are more nodules than there were 2 years ago and I'm no longer on any medication to control the growth or multiplication of them thanks that that first endo who took me off the tapazole I'd been on for 14 years and started all this.
So, WTF? I threw my hands up in disgust and cancelled the surgery, fired the oncologist and the quack internist, and I'm starting all over. Again. I can't even begin to describe how devastating this is to be so close to a resolution only to have it snatched away like that. I don't often wish bad things on people, but I think that both of those doctors need to spend some time being as sick as I have been and go thru the same bullshit about not getting treatment.
Anyway, I was going to tell you about the University. There is a qualification process before being accepted by one of the doctors and after a lot of tense waiting I found out this week that I qualify and was accepted. Yay! I won't be seeing the head of the department but I don't really care. I'll see their janitor if he knows how to fix me! The doctor I'm seeing is a woman and at the risk of sounding sexist, I'm glad about that. Maybe a woman will have more compassion in addition to being more accepting of the fact that hormones--whether estrogen or thyroid--can be completely unpredictable. She specializes in the balance of thyroid hormones which gives me hope that she won't just look at a set of numbers and say "well, those are all in normal ranges" and send me away. Personally I think that the numbers are all a moot point compared to the physical size of the thyroid and nodules and the health complications they cause but we've got to start somewhere. And maybe she'll be able to see the overall picture and put together the puzzle pieces of all my endocrine problems to find a cause. And sometimes when I dream, I have a pony. LOL But maybe, just maybe, she'll understand what's going on.
I'm hopeful.........ever hopeful. There's probably going to be another fight later on if surgery is ever confirmed since the insurance company will probably refuse if they got a copy of the oncologist's report. As much of an asshole as he is, I'm sure he sent them a copy too since he made sure to send a copy to every doctor he knows I see as well as four endos that he thought I might possibly see. But if the new doctor is good at what she does, she'll have people who can fight the insurance company for me too. And my pony.
I'm not giving up yet. I see the new endo on the 4th so keep your fingers crossed for me. Maybe she'll finally be the one who can help.
I never like to end on a negative note and there's always something positive about miniatures. This time the positive is that a new mini shop in New York is going to be carrying my work soon. Yay! How cool is that!!
No matter what else happens, minis make life good.